Summer Update: On Endings and Beginnings and Tissues

Our first big "official" summer outing was trip to the strawberry patch. Yes it was raining, and yes it was about 55 degrees (no joke) but I'm proud to report it was the first activity like this that didn't feel like a complete disaster, with toddlers running in one direction and big kids frustrated because we couldn't do "everything." It just felt like, KIDS. Four of them. And it was fun! Imagine that. 

We are over halfway through summer (I think?). 

July 4 has always felt like the halfway mark to me.

Anyway.

I'm behind. As per usual.

Leo graduated. From fifth grade. Just like that, elementary school, DONE.

This was his reaction:


And this was mine.


It didn't hurt of course, that they concluded the "ceremony" with the entire graduating class singing "We Are the World." My baby! Off to big, bad (I hope not!) middle school. Endings are hard. Goodbyes are harder. Leo's elementary school has always felt safe and nurturing and well, familiar (it hasn't always felt familiar of course, but the beginning, when it was scary and new feels like a billion years ago). Now we know almost everyone and even though it bugs me a little, Leo is known as the "unofficial mayor" (Hello, cliche!) of the school (you know what? Cliche and all, it comes from a good place and you can't really argue with that). 

On the last day of school, a much beloved teacher Leo had from kindergarten through second grade sent home a small photo album with a collection of pictures of his years with her, along with a heartfelt card. There was five year old Leo at the pumpkin patch (sob!), there was seven year old Leo making (pudding?) and wearing a Halloween costume (Aww). Not only was it sweet to see pictures of him I'd never seen, it was such a gift to see him "in action" at school, which is this somewhat mysterious other life our children have, largely without us.




Yup, I cried.

I remember when Leo was born (and I ordered basically every book related to Down syndrome from Amazon) reading something about how when you have a child with special needs, you will have an even larger "village" than you would have with a typical child, and you will often connect to these people more deeply. The reasons are many: There are extra challenges and extra struggles of course. There's much more information that needs to be disseminated. Your child's frustrations are theirs, but so are their victories. Also, there is usually much more communication between teacher and parent (in Leo's first year of elementary school there was a daily journal home and many, many emails). You can't help but grow close to these educators that are in the trenches along with you. And so some of them, the really good ones, find a small corner of your heart, where I think Mrs. L. and Mrs. F. (the third grade teacher who told me that I was a "forever friend") will always remain.


Back in May I met with Leo's future teachers at the middle school. We had an informal meeting (not an IEP).  Can I pause to say that just once, I'd like to get through a meeting with Leo's school "team" without being a sloppy, teary mess? Bad news, good news--doesn't matter. When it comes to talking about my boy? Tears. This particular meeting was emotional for a variety of reasons. I'm still not completely sold on his placement, but I don't know that many people who have middle-school-aged children with Down syndrome who are. I'm trying to be positive and open minded. I really am. 

Thankfully, Leo couldn't disagree more.

A few weeks later Leo and I toured his middle school together. Leo arm wrestled the principal twice and succeeded in not hugging anyone (though you could tell he REALLY wanted to--there had been a stern conversation about hugging prior to the tour). He was disappointed when the visit came to a close and kept trying to extend it (yes, he met the cafeteria ladies, several guidance counselors and found the comic book section of the library where he would have happily remained for the rest of the morning). 

Pass the tissues, middle school here we come.

Full Circle or "I Want to Help People"

It took years--YEARS for me to feel safe letting Leo walk in a parking lot without holding my hand, to leave the front door unlocked with him playing in the living room or mudroom or better yet--the FRONT YARD (fence-less) unattended.

I didn't think the day would ever come that I would go to a birthday party with him and not worry the whole time about where all the entrances and exits were, or that I wouldn't wait for the call to come from school saying he had vanished, walked out of a classroom and down the street, never to be heard from again.



And now, he's helping children cross the street. Of course with some supervision. But still! Talk about Full Circle.

Leo first mentioned safety patrol back in the fall. I admit, I dropped the ball. I don't recall seeing a form or application about it come home school, but it may have. I meant to ask his teacher about it but I forgot. Last week the application arrived in his homework folder, front and center, along with a note from Mrs. W: "Leo wants to be on Safety Patrol. Please have him fill out this application and return on Monday."

OK then.

This afternoon, Leo pulled the the neon yellow Safety Patrol sash out of his backpack as though it was a gold medal from the summer games. "My dream came true!" he exclaimed, practically vibrating with joy and pride.

It's no secret Leo loves to help people. If you have as much as a hang-nail he will lovingly prepare an ice pack (he prefers ice cubes wrapped in paper towels--don't ask) and present you with an assortment of Hello Kitty, Buzz Lightyear and Tinkerbell Band-Aids. He will rub your back and prop you up on pillows and announce, "I want to help people."

Erin and I were talking this weekend about how the perfect job would be something in a nurturing field--who knows-maybe a hospital or nursing home. As long as he's happy, and fulfilled--that's all we care about.

Safety Patrol seems like a pretty great start.

Greetings From a Very Grateful "Fifth Wheel"

Yes, this already happened. We may be a little excited.

I refuse to let a whole month go by with no posting.

Time marches on. Fall is a blur. We've already had our first snow fall.


Did I mention we had our first ever (that I can recall) white Thanksgiving?


Speaking of Thanksgiving, its spoils (the crafts and cards that the children bring home) never get old: Oh Leo, how I love YOU!


We are still trying to figure out Leo's placement for next year. More on that to come. I am in deep, deep (did I mention DEEP?) denial that this year is his last year of elementary school which is another way of saying that next year means middle school. Change is hard (for me). Leo has had a good few months, just finished up his first season of soccer on a special needs team and he's excited about the upcoming basketball season (same league).



I am ridiculously late to posting just about everything that happened in the last few months--this picture feels like a million hundred years ago but Ellie had a blast playing soccer this season. She was incredibly spirited and excited and I think just genuinely loved being a part of a team. She cried when the season ended ("I won't get to see any of the girls on my team anymore!"). She's devouring books (Dan Gutman is her favorite author) and leading us all in holiday craft time (my favorite of late is the ornament she made today, composed of red and green construction paper  that said simply: "2014: I was 7.")


This girl continues to push every button of my soul, even buttons I didn't know I existed. She barrels through her little life as her twin brother does, but in a different way. I've never known someone who could be so gleeful as she was being insistent. Often it seems like there simply are no rules in Lucy's life. When I tell her not to do something I'm met with, "Oh MOMMY," and I can almost hear her cluck her little tongue at me as she goes about her merry way, fetching her loaf of bread and jar of blueberry jam out of the refrigerator even though it's only 9:30 am, not lunch time  or even snack time and LUCY PUT DOWN THE STEAK KNIFE PLEASE. She's in that challenging "Uppy MOMMY!" phase--it's stunning how she can be so needy and yet so mind-numbingly independent at the same time. Case in point: Tonight I marveled at her ability to put on her own pajamas--she meticulously layed them out on the green shag rug and slipped each miniature leg into a sleeve of knit lavender polka dot legging. "I did it ALL by myself!" She squealed proudly.

And then barely missing a beat, she announced she didn't want to wear those pajamas. She wanted her CHEETA pajamas. Because, of course!!

Sometimes when I get truly desperate, I remind myself that she just wants attention--there's a lot of competition in our house and everyone has a different tactic in getting theirs. And just when I think she is going to throw herself on the ground or burst into tears and refuse to acquiesce, she'll shrug her tiny shoulders and say Oh, OK. Three year olds. They are just little mysteries aren't they?


Harry holds court at the traditional (preschool) feast of chicken nuggets and macaroni and cheese.

Harry is thriving at preschool. His language is exploding and his sentences are becoming more complex. "Mommy, I want to go downstairs and eat my dinner. Pick me up!" (This is his command to me every morning--by the way, dinner=breakfast). He continues to have a predilection for falling head first off of chairs and spilling the equivalent of buckets of seltzer (Oh HARRY! is still heard several times a day at our house), but it's partly how he barrels through his little life that makes him so irresistible. When he and Lucy are not having complicated conversations about who has which body part, and disagreeing about who ate all the Pirate Booty, they are telling us they love us. In the last few months Harry and Lucy have become confirmed playmates (they have been all along of course but the "parallel play" has officially graduated into more detailed, organized activities and scenarios. Ellie is often the ring leader: "Let's play Superheros! Let's play Evil Fairies! Let's play Snow Queens!"

I've been meaning to mention this for the last oh, three months (sorry, blog): More and more I feel like the most giant Fifth Wheel in the history of wheels around these four. They play and play and oh sure, fight and bicker and squable and someone bursts into tears and then someone yells and then someone apologizes. And then they go back to playing Snow Queens.


When they asked to do Play-Doh this weekend I cringed inwardly (it usually takes longer to set it up and clean up the mess than the time it takes to actually play it) but with no better ideas to offer (it was 29 degrees outside), I agreed. What followed was an unprecedented TWO HOUR PLAY-DOH MARATHON. I know.

It's amazing. And I never thought I would like being "left out" out of anything. But the other day I took a shower in the morning while they were all downstairs, just playing. I think it's fair to say I never thought that day would come. Life, it does go on.

Middle School Trepidation, (Happy) Conference Tears and My Accidental 31 for 21 Post

The middle of October? GAH!

This is the first year since I've kept this blog that I have not participated in 31 for 21 (blogging for 31 days in honor of Down syndrome awareness/October as Down syndrome Awareness month).

I am not happy about this. I miss this blog. I miss reflecting on this crazy life. It's not that I'm NOT reflecting, I just don't have the same kind of time to compose my thoughts on said crazy life.



As I always do, I will blame them.



They are so helpful while raking leaves, said no parent of preschool twins EVER.



Fall is in full swing. Our neighborhood is awash in orange twinkly lights and porches are bedecked with pumpkins, hay and mums. There also seems to be a proliferation of zombie decorations this year (or as the twins call them, "b'zombies," to which I echo, "pastrami?"). Don't ask--this is what happens when you spend WAY too much time with two three year olds.

We are almost two months into school (what?) and this week was parent teacher conferences.



I met with Leo's teacher first. It was...ok.  He's doing FINE. Math is still his biggest struggle and I'm trying to figure out if it has to be this hard. I mean, I'm not looking for some kind of miracle but I have to wonder if part of it is the way it's being taught. We discussed my interest in him using a more visual math program. I brought up (TouchMath) a program I'd heard good things about and was met with blank looks. I will continue to pursue this. One lightbulb moment though: I don't have to help Leo with his homework. In fact, according to his teacher I shouldn't be doing so. I can't tell you how huge this is. Up until this point I've been sitting with him, dictating some words when he asks, helping him form sentences. The teacher's response: Stop it. He can do it himself and SHOULD be. And guess what? She was right. Of course Leo is not happy about this new development but he'll get used to it.


Our annual visit to...the apple farm parking lot. Ha ha kidding. We did go apple picking, it was just so hectic that I forgot to ask Erin to take a picture until we were about to pack it up go home. Be assured it was scenic!

I can't go into too much detail here but I will say that I am getting VERY NERVOUS about the upcoming transition to middle school. Preparations are already beginning. We are touring a prospective school on Monday and another the following week. This is a time I've been dreading for years, leaving the safe, familiar comfort of his sweet elementary school. The rumor has always been, as one of my dear fellow "special needs" moms puts it, that middle school is "where it all falls apart." Let's hope (OBVIOUSLY) that's not the case. Stay tuned.


Ellie is really into Halloween. Talking about Halloween. Drawing Halloween (seen here: haunted house).

Ellie's conference felt decidedly lighter. When I walked into the room, the teacher welcomed me to a little table and announced that "this is a conference I've been looking forward to."

Swoon.

Of course I teared up. I almost always do at conferences. Yes, Ellie is doing well and fine academically. She's reading at grade level. Math-wise, she's right where she should be. But what her teacher remarked on is Ellie's sensitivity and helpfulness, her compassion and innate ability to recognize when other children need assistance. She detailed how Ellie will help another child, but do it in such a way that she's not drawing attention to herself or seeking out commendation, nor does she in any way make the child feel inferior because they need extra help.

Hmm. Wonder where this comes from? Could it be, that all those articles and studies about the benefits of growing up with a sibling with special needs might actually be true?



Another small example: Ellie's teacher told me that the other day she asked Ellie to bring something to the office and told Ellie she could choose a "buddy" to accompany her. All arms went up in the air. Rather than choose one of her little friends, Ellie, by her own volition, picked a child that is one of the most troublesome, who requires a lot of attention (for behavior). And Ellie's teacher thought that was a pretty impressive choice.

Last night Ellie was asking me about middle school (she listens to everything I say. When will I actually digest this?). "Will Leo and I go to the same middle school?" She asked. I told her no, that it wouldn't work out because of the age difference, but then I did the math and realized they could potentially be in the same high school (OMG. HIGH SCHOOL?).

"But we wouldn't be in the same class, right?"

I said no, not the same class. And then I paused and asked her why she thought that was. I wanted to know if she was going to say something about special needs (she does know the term and she does know about Leo's Down syndrome).

"We won't be in the same class because they don't allow brothers and sisters to be in the same class," Ellie announced with certainty and pride and just a tinge of irritation for my not knowing this.

Swoon again.

So there you go. And maybe this is my accidental "31 for 21 post."

5, 2, Pre-K, Pre-K: Ready, Set, Go!

And just like that, summer was over.



All in all, it was a good one. It was not without its complications of course (working part-time from home with four kids? Not for the faint of heart-By the way, I think I need to just go ahead and pre-order that line on my grave stone: Not For The Faint of Heart). But considering all there was to balance, I think it went well. It was the first I spent with the kids since The First Summer (that would be, when the twins were born and GAH I think I have basically repressed that by necessity). Needless to say life at home with four that includes twin three year olds is a little different than newborn twins (newsflash!).

I want to say this was our last "hard" year (stop laughing). Maybe next year I will be able to manage more daring outings solo? In the beginning and middle of the summer we were still haggling with naps so we were limited schedule-wise--oh but those days are all in the past now (SOB). Harry could definitely still use one, a fact which he makes particularly clear around 2:58 pm each day when suddenly all the Lego structures start falling apart and he wants cheese crackers right! Nowwwww! And whyyyyy can't he have MORE Batman Legos? But instead, he chose to fall asleep on the way to picking Ellie up from camp. For a whole ten minutes. On particularly long days, Lucy would usually snooze on the way home. Because, tandem naps? HA!


It was Ellie who had this genius idea when we went school supply shopping last week. Two carts! One for Twins, one for Stuff. Brilliant. Everyone was happy, reasonably calm and well-behaved. Also? Contained. WIN!


By Labor Day everyone was clamoring to get back to routine (or start one). This was at 7:30 in the morning. Ellie playing school with her eager students.


Ironically, the littlest one was the first to go back. Lucy started preschool last Wednesday (a day before the other three returned). So far (all two days), so good! Her teacher has picked up on her "stubborn streak" (a kind word for Lucy's tendency to uh, bulldoze her way through life), but we shall see how it all shakes out. She is certainly ready, that we know.


First day of second and fifth grade. No idea what was going on with this little love fest here. I think they were both so thrilled to soon be rid of each other that they decided to show a little last-minute affection.


I know, I know, Harry was in preschool for much of the summer but he was "off" the whole month of August and he had an official first day just like the big kids.


Day one had Ellie very excited to impress her new teacher (or maybe she was just eager to try out the Mr. Sketch markers I had to go to two different stores to find-they were on her supply list as "required.")


Ready! Set! Everyone say, Back to School!

And that's just what they did.